The controversy over Lyme Disease update….a gathering storm?
July 8, 2009

Theres no medicine for someone like you...

There's no medicine for someone like you...

I wanted to thank all of you who wrote responses to my blog entry about contracting Lyme Disease…the more I’ve read about this disease, and it is scary, let me tell you…the more I realize how fortunate I am to have 1. developed a rash, and 2. gotten treatment right away. I was so happy when I recently took my last dose of Doryx!!( And it was expensive…$150 even with prescription coverage..the lady at Giant Pharmacy said “whew” when she rang it up-I soon found out why.) These are just a few comments I’ve received….from Lucy:

Dear Donna,

Thank you for your anticipated upcoming effort to educate others concerning Lyme and tick borne diseases.I am happy to hear you got the rash so it could alert you to the fact you had a problem. I am also happy to hear and that you saw the rash and acted promptly (approximately 50 percent of those infected don’t get the rash in Maryland- and less than 10 percent of children get a rash).I am thankful that your doctor was able to recognise the rash and you were treated promptly. (This isn’t always the case and the rash is often misdiagnosed as a spider bite or ring worm or some other malady.)”

And oddly enough, before I saw my doctor, I thought maybe it was a spider bite too!

And starting this Friday night, July 10th, at The Senator Theatre on York Road, an award winning documentary about Lyme Disease called Under Our Skin-the Untold Story of Lyme Disease will be showing for a week(click here if you want to see the film trailer-wow)….I plan to see the film with my family, and I hope you do too. Being unaware of Lyme Disease and its dangers , is a risky ignorance. I hope you’ll see it. Linda Brace, the mother of a young woman featured in the documentary wrote me this:

Dear Ms. Hamilton:  I am the mother of Mandy Hughes, who is featured in the documentary “Under Our Skin” and frequently the spokesperson at events and screenings related to the documentary.

As a parent, I had/have all the hopes that my vibrant, healthy and intelligent child would grow up and thrive. Going from a dream of working in the profession of her choice, to within a few short years, wheelchair bound and in extreme pain, which you have seen in the documentary, cripples an entire family.

What is not seen are the personal struggles/tolls taken on families both emotionally and financially seeking out treatments that the Healthcare community refuses to acknowledge in hopes that this will all “just go away”. The fact is that it will not go away and neither can we.”

And don’t forget, it’s not just humans who get Lyme Disease…your pets can also be victims…perhaps more easily than you.